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General Information
Cancer Genetics Research Information Cancer Centers |
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Breast/Ovarian Cancer
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American
Cancer Society
Home to the nationally
recognized non-profit organization, this site contains a variety of information
on cancer.
Cancer
Information Network
Containing separate
sections for professionals and patients, this site is a good source of
facts and news on various cancers.
Cancer
Information Service
Sponsored by
the National Cancer Institute, this site is the home of the national information
and education network, available at 1-800-4-CANCER, that provides the most
up-to-date and accurate information on cancer.
Cancer.gov't
Also sponsored
by the National Cancer Institute, this site provides access to several
NCI databases including the PDQ (Physician Data Query) and Cancerlit.
DrKoop.com
This site was started by Dr. C. Everett Koop, former U.S. Surgeon General, and contains a variety of consumer health information, including cancer.
Healthfinder
Developed by
the U.S. Department of Health and Human Services, this site contains links
to over 1,400 health related sites.
Medscape Oncology
A commercial web service for both clinicians and consumers, this site is very comprehensive.
National
Institutes of Health
This is a link
to the NIH, one of the 8 agencies that make up the Public Health Service
in the Department of Health and Human Services, and home to the NCI.
National Women's Health Information Center (NWHIC)
A project of the Office of Women's Health, US Department of Health and Human Services, NWHIC is a gateway to health information designed specially for women.
Office of Rare Diseases (NIH)
The National Human Genome Research Institute
(NHGRI) and the National Institutes of Health's Office of Rare Diseases
(ORD) have launched an information center that delivers free and immediate
access to information specialists who can provide accurate, reliable
information about genetic and rare diseases to patients and their families.
There are more than 6,000 genetic and rare diseases afflicting more than 25
million Americans, but many of these illnesses affect relatively few
individuals. As a result, information about these rare disorders may be
limited or difficult to find. The new service, called the Genetic and Rare
Diseases Information Center, will help relieve this problem by providing
reliable information about individual disorders. Opened in February 2002,
the center provides experienced information specialists to personally answer
questions from patients and family members on the phone, as well as by
email, fax and regular mail.
Talking Glossary of Genetic Terms The National Human Genome Research Institute (NHGRI) created the Talking Glossary of Genetic Terms to help people without scientific backgrounds understand the terms and concepts used in genetic research. Simply click on the term of interest to open a page with a wealth of information, including the term's pronunciation, audio information, images and additional links to related terms. Students, teachers and parents will find the glossary an easy-to-use, always available learning source on genetics.
CancerTrialsHelp.org, information for patients, caregivers, advocates and healthcare professionals including TrialCheck, a search engine for cancer clinical trials and "Cancer Research: A Guide to Clinical Trials", an interactive study guide. New!
Cancer
and Genetics
Sponsored by the Robert
H. Lurie Comprehensive Cancer Center of Northwestern University, this site
contains information for the general public, primary care physicians, nurse
practitioners and other health care professionals.
Classical Genetics
Sponsored by Electronic Scholarly Publishing and the U.S. Department of Energy, the site offers a number of historical papers on classical genetics, including those by Charles Darwin and Gregor Mendel.
Council for Responsible Genetics
Founded in 1983, this is a national nonprofit organization of scientists, public health advocates and others that monitor the development of new genetic technologies and advocate for their responsible use.
Department of Energy Human Genome Program
This is the site of the U.S. Department of Energy's Human Genome Program, which is working in conjunction with the National Human Genome Research Institute to reach the goals of the U.S. Human Genome Project.
The DNA Files
Funded in part by the National Science Foundation and distributed by National Public Radio, this site hosts a series of public radio documentaries on genetic research and its implications.
ELSI
The Ethical, Legal, Social Implications program is the branch of the National Human Genome Research Institute established in 1990 to address issues related to human genetics research.
Human Genome Project
Home of the international effort to determine the DNA sequence the entire human genome sponsored by the
National Institutes of Health.
Human Genome Project Information
A central site of Human Genome Project related links sponsored by the U.S. Department of Energy.
Principles and Recommendations: Task Force on Genetic Testing
This site shows the efforts of the Task Force on Genetic Testing, a working group of the ELSI program.
A
Revolution in Progress: Human Genetics and Medical Research
Genetics research is important in the prevention and treatment of
disease. This exhibit provides information on what DNA, genes, and
chromosomes do in our bodies, explains how basic research has led to a better
understanding of genetic research, and discusses the scope, purpose, and
techniques of the Human Genome Project to map and decode our genes. The
exhibit poses such questions as: How do genes cause disease? Can gene
therapy work? How do we manipulate genes and should we? This exhibit is produced
by the Stetten Museum in collaboration with the National Institute of Allergy
and Infectious Diseases, the national Cancer Institute, the National Human
Genome Research Institute, and the National Institute of General Medical
Sciences.
Statistical Coordinating
Center for the Cancer Genetics Network (CGN)
Developed by the Massachusetts General Hospital - Statistical
Coordinating Center for the Cancer Genetics Network (CGN), this site
focuses on CGN resources available to outside investigators.
Cancer
Genetics Network (CGN)
A national network of academic and health
centers specializing in the study of inherited predisposition to cancer.
The resource is available to the research community at large to support studies
on the genetic basis of human cancer susceptibility, the integration of this
information into medical practice, and on the psychosocial, ethical, legal and
public health issues associated with human genetics. The CGN's interests
include: gene discovery, gene characterization, gene-environment
interaction, translational research, behavioral research. The growing
database has information on 18,700 individuals (14,800 families) with cancer
and/or a family history of cancer. Data available to researchers include
demographic information, relevant medical history, and a 4-generation cancer
family history on each enrollee. The population enrolled makes possible
research on both common and uncommon tumors.
Cancer Genome Anatomy Project (CGAP)
Sponsored by the NCI, CGAP aims to identify the genes that cause and promote cancer.
Clinical
Genetics: Information for Genetic Professionals
Sponsored by
University of Kansas Medical Center, this site contains clinical, research,
and educational resources for genetics professionals.
Division
of Cancer Epidemiology and Genetics
Part of the National
Cancer Institute, this site contains information on population based research
on environmental and genetic determinants of cancer. Mainly for professionals.
HuGE
Net
Part of CDC's
As part of the Office of Genetics and Disease Control, Human Genome Epidemiology Network is dedicated to population-based
epidemiologic information on the human genome.
National
Library of Medicine
Office
of Genetics and Disease Prevention
GeneTests
GeneTests provides current, authoritative information on genetic testing and its
use in diagnosis, management, and genetic counseling. It also promotes the
appropriate use of genetic services in patient care and personal decision
making.
Association of Community Cancer Centers
Carolina-Georgia Center
Duke University Comprehensive Cancer Center
Fred Hutchinson Cancer Research Center
GBMC (Greater Baltimore area
Medical Cancer Center), HARVEY INSTITUTE FOR HUMAN GENETICS
Provides genetic services to patients throughout the life cycle. The staff
includes physicians, genetic counselors, ultrasounds and laboratory
technologists with expertise in clinical, reproductive, and laboratory
genetics.
Huntsman Cancer Institute
Johns Hopkins Oncology Center
Lombardi Cancer Center
M.D. Anderson Cancer Center
National Comprehensive Cancer Network (NCCN)
Northwest Cancer Genetics Network
Texas Cancer Genetics Consortium
University of California Irvine Informatics Center
University of Pennsylvania Cancer Center
Johns
Hopkins Breast Center
The
Susan G. Komen Foundation
National Ovarian Cancer Coalition
Celebrating Life Foundation
Women's Cancer Network (WCN)
National Breast Cancer Coalition (NBCC)
The Breast Cancer Research Foundation
AVON's
Breast Cancer Awareness Crusade
Johns Hopkins Hereditary Colorectal Cancer Site
Johns Hopkins Gastroenterology and Hepatology Resource Center
American
Gastroenterological Association
International
Collaborative Group on Hereditary Non-Polyposis Colorectal Cancer
National Colorectal Cancer Awareness Month
National Colorectal Cancer Research Alliance
(NCCRA)
Inheritance of Colon Cancer: a Sibling Pair Study National Recruitment Link
Johns Hopkins Brady Urological Institute
National Prostate Cancer Coalition
CaP CURE (Association for the Cure of Cancer of the Prostate)
Prostate Cancer Awareness Week
The Johns Hopkins University Department of Pathology Pancreatic Cancer Web site
American Society of Human Genetics
American
College of Medical Genetics
International
Society of Nurses in Genetics
National
Society of Genetic Counselors
American Gastroenterological Association
American
Society of Clinical Oncology
Foundation for Genetic Medicine, Inc.
Alliance of Genetic Support Groups
A Service of the National Library of Medicine,
provides access to over 12 million MEDLINE citations back to the mid-1960's and
additional life science journals. PubMed includes links to many sites
providing full text articles and other related resources.
Maintained by
the Centers for Disease Control and Prevention, this site contains information
on the impact of human genetic research and the Human Genome Project on
public health and disease prevention.
A national interdisciplinary organization that promotes quality cancer care.
Part of the Cancer Genetics Network, Duke University Medical Center, the University of North Carolina at Chapel Hill, and Emory University are collaborating as the Carolina-Georgia Center covering the southeast.
Link to Duke University's cancer center, which researches all aspects of cancer biology and treatment and is also an NCI designated Comprehensive Cancer Center.
Part of the Cancer Genetics Network, the Hutchinson Center is an NCI designated Comprehensive Cancer Center.
At the University of Utah, the Huntsman Cancer Institute is dedicated to finding the genetic and molecular answers to stop cancer.
A leader in cancer research and treatment, the Johns Hopkins Oncology Center is internationally recognized and an NCI designated Comprehensive Cancer Center.
As an NCI designated Comprehensive Cancer Center located at Georgetown University Medical Center, the Lombardi Cancer Center strives to provide patients with both medical and emotional help.
Part of the University of Texas and one of the first three NCI designated Comprehensive Cancer Centers, M.D. Anderson is one of the largest cancer centers in the country and is dedicated to patient care.
A not for profit corporation that is an alliance of the world's leading cancer centers.
A collaborative project between Fred Hutchinson Cancer Research Center and the University of Washington Medical School, this is one of the 8 major centers of the Cancer Genetics Network established by the National Cancer Institute.
One of the 8 major centers established as part of the Cancer Genetics Network, the Texas Cancer Genetics Consortium consists of M.D. Anderson Cancer Center, University of Texas Health Science Center, University of Texas Southwestern Medical Center, and Baylor College of Medicine.
The Informatics Center at UCI provides the central cancer registry database for the Cancer Genetics Network.
Also an NCI designated Comprehensive Cancer Center, the University of Pennsylvania Cancer Center is designed to best meet the needs of cancer patients and families, and they have also developed OncoLink, a comprehensive web-based information service.
This site is
the Internet link to the Johns Hopkins Breast Center, part of the Johns
Hopkins Oncology Center, a National Cancer Institute designated Comprehensive
Cancer Center.
For both patients
and professionals, this site contains information on breast cancer detection
and coping as well as grant and funding opportunities.
Founded by ovarian cancer survivors, the site has a variety of information about ovarian cancer including news and support groups.
A foundation dedicated to promoting breast cancer awareness in the African American community.
Developed by the Society of Gynecologic Oncologists, WCN consists of physicians dedicated to preventing, detecting, and conquering cancer in women.
A grassroots advocacy organization dedicated to fighting breast cancer, NBCC's mission is to eradicate breast cancer through action and advocacy.
This is a not-for-profit organization that funds clinical and genetic research into the causes and treatment of breast cancer.
This is AVON's
Internet crusade to provide more women, particularly low-income, minority
and older women, with access to breast cancer education and early detection
screening services.
This site educates and informs people about hereditary colorectal cancer. You can find specific information on Familial Adenomatous Polyposis
(FAP), Hereditary Nonpolyposis Colorectal Cancer (HNPCC), and a gene mutation called APC I1307K. There is also a site just for kids who have a genetic risk for
FAP.
Developed by the Johns Hopkins Gastroenterology and Hepatology Division,
this site contains news and other educational information on gastrointestinal
diseases including video clips.
Containing several
online fact sheets and brochures, this site is home to the oldest non-profit
specialty medical society in the U.S.
Mainly for physicians
and researchers, this site contains a mutation database and a set of clinical guidelines.
Maintained by the Cancer Research Foundation of America, this is the official site of National Colorectal Cancer Awareness Month, designated as the month of March.
Co-founded by NBC TODAY show co-anchor Katie Couric, NCCRA is dedicated to the eradication of colon cancer by harnessing the power of celebrity to promote education, fundraising, research and early medical screening.
National Recruitment site for the Sibling Pair Study. You may be
eligible for this study if you have had colon cancer or precancerous polys and
have a sibling.
Part of the Johns Hopkins Medical Institutions, this center is dedicated to providing state-of-the-art medical and surgical care in all aspects of adult urology, including prostate cancer.
A national coalition of cancer advocates, medical professionals, prostate cancer survivors and their families dedicated to ending prostate cancer.
A nonprofit organization dedicated to finding the cure for prostate cancer, Cap CURE is the largest private source of funding for prostate cancer research.
Managed by the Prostate Cancer Education Council, this is the official site of Prostate Cancer Awareness Week.
Launched in 1995, this site has a very active patient discussion board, frequently asked questions, and information on the classification of pancreatic cancer.
Home of a national organization that includes researchers, clinicians, genetic counselors, and nurses concerned with of human genetics.
The ACMG provides education, resources and a voice for the medical genetics
profession. To make genetic services available to and improve the health
of the public, the ACMG promotes the development and implementation of methods
to diagnose, treat and prevent genetic disease.
Dedicated to
promoting the scientific and professional growth of nurses in the field
of human genetics.
Home to over
1600 genetic counselors, this site contains a resource link to genetic
counselors throughout the United States.
Representing 10,000 gastroenterologic physicians and scientists engaged in clinical practice, research, and education, this site is home to the oldest non-profit specialty medical society in the U.S.
Representing
more than 10,000 oncology professionals, this site contains numerous resources
for both professionals and people with cancer.
An independent, non-profit organization dedicated to promoting genetic medicine through policy and education.
Nonprofit organization that addresses the concerns of people with, and at risk for, genetic conditions.
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modifed 9/2/2021
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