Related Sites line
General Information
Cancer Genetics
Research Information
Cancer Centers
Breast/Ovarian Cancer
Colorectal Cancer
Prostate Cancer
Pancreatic Cancer
Professional Organizations


General Information

American Cancer Society
Home to the nationally recognized non-profit organization, this site contains a variety of information on cancer.

Cancer Information Network
Containing separate sections for professionals and patients, this site is a good source of facts and news on various cancers.

Cancer Information Service
Sponsored by the National Cancer Institute, this site is the home of the national information and education network, available at 1-800-4-CANCER, that provides the most up-to-date and accurate information on cancer.'t
Also sponsored by the National Cancer Institute, this site provides access to several NCI databases including the PDQ (Physician Data Query) and Cancerlit.
This site was started by Dr. C. Everett Koop, former U.S. Surgeon General, and contains a variety of consumer health information, including cancer.

Developed by the U.S. Department of Health and Human Services, this site contains links to over 1,400 health related sites.

Medscape Oncology
A commercial web service for both clinicians and consumers, this site is very comprehensive.

National Institutes of Health
This is a link to the NIH, one of the 8 agencies that make up the Public Health Service in the Department of Health and Human Services, and home to the NCI.

National Women's Health Information Center (NWHIC)
A project of the Office of Women's Health, US Department of Health and Human Services, NWHIC is a gateway to health information designed specially for women.

Office of Rare Diseases (NIH)
The National Human Genome Research Institute (NHGRI) and the National Institutes of Health's Office of Rare Diseases (ORD) have launched an information center that delivers free and immediate access to information specialists who can provide accurate, reliable information about genetic and rare diseases to patients and their families. There are more than 6,000 genetic and rare diseases afflicting more than 25 million Americans, but many of these illnesses affect relatively few individuals. As a result, information about these rare disorders may be limited or difficult to find. The new service, called the Genetic and Rare Diseases Information Center, will help relieve this problem by providing reliable information about individual disorders. Opened in February 2002, the center provides experienced information specialists to personally answer questions from patients and family members on the phone, as well as by e�mail, fax and regular mail.

Talking Glossary of Genetic Terms                                                                                                    The National Human Genome Research Institute (NHGRI) created the Talking Glossary of Genetic Terms to help people without scientific backgrounds understand the terms and concepts used in genetic research.  Simply click on the term of interest to open a page with a wealth of information, including the term's pronunciation, audio information, images and additional links to related terms.  Students, teachers and parents will find the glossary an easy-to-use, always available learning source on genetics., information for patients, caregivers, advocates and healthcare professionals including TrialCheck, a search engine for cancer clinical trials and "Cancer Research: A Guide to Clinical Trials", an interactive study guide.  New!


Cancer Genetics

Cancer and Genetics
Sponsored by the Robert H. Lurie Comprehensive Cancer Center of Northwestern University, this site contains information for the general public, primary care physicians, nurse practitioners and other health care professionals.

Classical Genetics
Sponsored by Electronic Scholarly Publishing and the U.S. Department of Energy, the site offers a number of historical papers on classical genetics, including those by Charles Darwin and Gregor Mendel.

Council for Responsible Genetics
Founded in 1983, this is a national nonprofit organization of scientists, public health advocates and others that monitor the development of new genetic technologies and advocate for their responsible use.

Department of Energy Human Genome Program
This is the site of the U.S. Department of Energy's Human Genome Program, which is working in conjunction with the National Human Genome Research Institute to reach the goals of the U.S. Human Genome Project.

The DNA Files
Funded in part by the National Science Foundation and distributed by National Public Radio, this site hosts a series of public radio documentaries on genetic research and its implications.

The Ethical, Legal, Social Implications program is the branch of the National Human Genome Research Institute established in 1990 to address issues related to human genetics research.

Human Genome Project
Home of the international effort to determine the DNA sequence the entire human genome sponsored by the National Institutes of Health.

Human Genome Project Information
A central site of Human Genome Project related links sponsored by the U.S. Department of Energy.

Principles and Recommendations: Task Force on Genetic Testing
This site shows the efforts of the Task Force on Genetic Testing, a working group of the ELSI program.

A Revolution in Progress: Human Genetics and Medical Research
Genetics research is important in the prevention and treatment of disease.  This exhibit provides information on what DNA, genes, and chromosomes do in our bodies, explains how basic research has led to a better understanding of genetic research, and discusses the scope, purpose, and techniques of the Human Genome Project to map and decode our genes.  The exhibit poses such questions as:  How do genes cause disease? Can gene therapy work? How do we manipulate genes and should we? This exhibit is produced by the Stetten Museum in collaboration with the National Institute of Allergy and Infectious Diseases, the national Cancer Institute, the National Human Genome Research Institute, and the National Institute of General Medical Sciences.  


Research Information

Statistical Coordinating Center for the Cancer Genetics Network (CGN)
Developed by the Massachusetts General Hospital - Statistical Coordinating Center for the Cancer Genetics Network (CGN), this site focuses on CGN resources available to outside investigators.

Cancer Genetics Network (CGN) 
A national network of academic and health centers specializing in the study of inherited predisposition to cancer.  The resource is available to the research community at large to support studies on the genetic basis of human cancer susceptibility, the integration of this information into medical practice, and on the psychosocial, ethical, legal and public health issues associated with human genetics.  The CGN's interests include:  gene discovery, gene characterization, gene-environment interaction, translational research, behavioral research.  The growing database has information on 18,700 individuals (14,800 families) with cancer and/or a family history of cancer.  Data available to researchers include demographic information, relevant medical history, and a 4-generation cancer family history on each enrollee.  The population enrolled makes possible research on both common and uncommon tumors. 

Cancer Genome Anatomy Project (CGAP)
Sponsored by the NCI, CGAP aims to identify the genes that cause and promote cancer.

Clinical Genetics: Information for Genetic Professionals
Sponsored by University of Kansas Medical Center, this site contains clinical, research, and educational resources for genetics professionals.

Division of Cancer Epidemiology and Genetics
Part of the National Cancer Institute, this site contains information on population based research on environmental and genetic determinants of cancer. Mainly for professionals.

HuGE Net
Part of CDC's As part of the Office of Genetics and Disease Control, Human Genome Epidemiology Network is dedicated to population-based epidemiologic information on the human genome.

National Library of Medicine
A Service of the National Library of Medicine, provides access to over 12 million MEDLINE citations back to the mid-1960's and additional life science journals.  PubMed includes links to many sites providing full text articles and other related resources. 

Office of Genetics and Disease Prevention
Maintained by the Centers for Disease Control and Prevention, this site contains information on the impact of human genetic research and the Human Genome Project on public health and disease prevention.

GeneTests                                                                                                                               GeneTests provides current, authoritative information on genetic testing and its use in diagnosis, management, and genetic counseling.  It also promotes the appropriate use of genetic services in patient care and personal decision making.


Cancer Centers

Association of Community Cancer Centers
A national interdisciplinary organization that promotes quality cancer care.

Carolina-Georgia Center
Part of the Cancer Genetics Network, Duke University Medical Center, the University of North Carolina at Chapel Hill, and Emory University are collaborating as the Carolina-Georgia Center covering the southeast.

Duke University Comprehensive Cancer Center
Link to Duke University's cancer center, which researches all aspects of cancer biology and treatment and is also an NCI designated Comprehensive Cancer Center.

Fred Hutchinson Cancer Research Center
Part of the Cancer Genetics Network, the Hutchinson Center is an NCI designated Comprehensive Cancer Center.

GBMC (Greater Baltimore area Medical Cancer Center), HARVEY INSTITUTE FOR HUMAN GENETICS  Provides genetic services to patients throughout the life cycle.  The staff includes physicians, genetic counselors, ultrasounds and laboratory technologists with expertise in clinical, reproductive, and laboratory genetics. 

Huntsman Cancer Institute
At the University of Utah, the Huntsman Cancer Institute is dedicated to finding the genetic and molecular answers to stop cancer.

Johns Hopkins Oncology Center
A leader in cancer research and treatment, the Johns Hopkins Oncology Center is internationally recognized and an NCI designated Comprehensive Cancer Center.

Lombardi Cancer Center
As an NCI designated Comprehensive Cancer Center located at Georgetown University Medical Center, the Lombardi Cancer Center strives to provide patients with both medical and emotional help.

M.D. Anderson Cancer Center
Part of the University of Texas and one of the first three NCI designated Comprehensive Cancer Centers, M.D. Anderson is one of the largest cancer centers in the country and is dedicated to patient care.

National Comprehensive Cancer Network (NCCN)
A not for profit corporation that is an alliance of the world's leading cancer centers.

Northwest Cancer Genetics Network
A collaborative project between Fred Hutchinson Cancer Research Center and the University of Washington Medical School, this is one of the 8 major centers of the Cancer Genetics Network established by the National Cancer Institute.

Texas Cancer Genetics Consortium
One of the 8 major centers established as part of the Cancer Genetics Network, the Texas Cancer Genetics Consortium consists of M.D. Anderson Cancer Center, University of Texas Health Science Center, University of Texas Southwestern Medical Center, and Baylor College of Medicine.

University of California Irvine Informatics Center
The Informatics Center at UCI provides the central cancer registry database for the Cancer Genetics Network.

University of Pennsylvania Cancer Center
Also an NCI designated Comprehensive Cancer Center, the University of Pennsylvania Cancer Center is designed to best meet the needs of cancer patients and families, and they have also developed OncoLink, a comprehensive web-based information service.


Breast/Ovarian Cancer

Johns Hopkins Breast Center
This site is the Internet link to the Johns Hopkins Breast Center, part of the Johns Hopkins Oncology Center, a National Cancer Institute designated Comprehensive Cancer Center.

The Susan G. Komen Foundation
For both patients and professionals, this site contains information on breast cancer detection and coping as well as grant and funding opportunities.

National Ovarian Cancer Coalition
Founded by ovarian cancer survivors, the site has a variety of information about ovarian cancer including news and support groups.

Celebrating Life Foundation
A foundation dedicated to promoting breast cancer awareness in the African American community.

Women's Cancer Network (WCN)
Developed by the Society of Gynecologic Oncologists, WCN consists of physicians dedicated to preventing, detecting, and conquering cancer in women.

National Breast Cancer Coalition (NBCC)
A grassroots advocacy organization dedicated to fighting breast cancer, NBCC's mission is to eradicate breast cancer through action and advocacy.

The Breast Cancer Research Foundation
This is a not-for-profit organization that funds clinical and genetic research into the causes and treatment of breast cancer.

AVON's Breast Cancer Awareness Crusade
This is AVON's Internet crusade to provide more women, particularly low-income, minority and older women, with access to breast cancer education and early detection screening services.



Colorectal Cancer

Johns Hopkins Hereditary Colorectal Cancer Site
This site educates and informs people about hereditary colorectal cancer. You can find specific information on Familial Adenomatous Polyposis (FAP), Hereditary Nonpolyposis Colorectal Cancer (HNPCC), and a gene mutation called APC I1307K. There is also a site just for kids who have a genetic risk for FAP.

Johns Hopkins Gastroenterology and Hepatology Resource Center
Developed by the Johns Hopkins Gastroenterology and Hepatology Division, this site contains news and other educational information on gastrointestinal diseases including video clips.

American Gastroenterological Association
Containing several online fact sheets and brochures, this site is home to the oldest non-profit specialty medical society in the U.S.

International Collaborative Group on Hereditary Non-Polyposis Colorectal Cancer
Mainly for physicians and researchers, this site contains a mutation database and a set of clinical guidelines.

National Colorectal Cancer Awareness Month
Maintained by the Cancer Research Foundation of America, this is the official site of National Colorectal Cancer Awareness Month, designated as the month of March.

National Colorectal Cancer Research Alliance (NCCRA)
Co-founded by NBC TODAY show co-anchor Katie Couric, NCCRA is dedicated to the eradication of colon cancer by harnessing the power of celebrity to promote education, fundraising, research and early medical screening.

Inheritance of Colon Cancer: a Sibling Pair Study National Recruitment Link
National Recruitment site for the Sibling Pair Study.  You may be eligible for this study if you have had colon cancer or precancerous polys and have a sibling.


Prostate Cancer

Johns Hopkins Brady Urological Institute
Part of the Johns Hopkins Medical Institutions, this center is dedicated to providing state-of-the-art medical and surgical care in all aspects of adult urology, including prostate cancer.

National Prostate Cancer Coalition
A national coalition of cancer advocates, medical professionals, prostate cancer survivors and their families dedicated to ending prostate cancer.

CaP CURE (Association for the Cure of Cancer of the Prostate)
A nonprofit organization dedicated to finding the cure for prostate cancer, Cap CURE is the largest private source of funding for prostate cancer research.

Prostate Cancer Awareness Week
Managed by the Prostate Cancer Education Council, this is the official site of Prostate Cancer Awareness Week.


Pancreatic Cancer

The Johns Hopkins University Department of Pathology Pancreatic Cancer Web site
Launched in 1995, this site has a very active patient discussion board, frequently asked questions, and information on the classification of pancreatic cancer.


Professional Organizations

American Society of Human Genetics
Home of a national organization that includes researchers, clinicians, genetic counselors, and nurses concerned with of human genetics.

American College of Medical Genetics
The ACMG provides education, resources and a voice for the medical genetics profession.  To make genetic services available to and improve the health of the public, the ACMG promotes the development and implementation of methods to diagnose, treat and prevent genetic disease.

International Society of Nurses in Genetics
Dedicated to promoting the scientific and professional growth of nurses in the field of human genetics.

National Society of Genetic Counselors
Home to over 1600 genetic counselors, this site contains a resource link to genetic counselors throughout the United States.

American Gastroenterological Association
Representing 10,000 gastroenterologic physicians and scientists engaged in clinical practice, research, and education, this site is home to the oldest non-profit specialty medical society in the U.S.

American Society of Clinical Oncology
Representing more than 10,000 oncology professionals, this site contains numerous resources for both professionals and people with cancer.

Foundation for Genetic Medicine, Inc.
An independent, non-profit organization dedicated to promoting genetic medicine through policy and education.

Alliance of Genetic Support Groups
Nonprofit organization that addresses the concerns of people with, and at risk for, genetic conditions.



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